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Tag Archives: peripheral neuropathy

Hell or High Water

Thus far all field research has proved I am immortal. Well, at least more difficult to kill than anticipated. The side effects of the Benlysta lasted quite a bit longer than anticipated. The psychological impact was a surprise for all involved, luckily I’m doing better now. Through some act of god my teachers allowed me to finish my school work over winter break [well one JUST got finished]. In fact, upon receiving my email explaining the situation they had a group meeting and figured out what needed to be done in order for me to graduate on time and finish out the semester.  I realize I am incredibly lucky/blessed to have teachers who are so willing to go up to bat for me. Not a single one asked for a shred of evidence, they took me at my word. This is absolutely amazing considering the nature of my situation and how damn weird it is. Thanks to them I was able to keep my internship and am almost done with my student teaching. This is not to say there haven’t been issues.

For instance:

  • Right now I am having hip and shoulder issues and doubled up on my Celebrex.
  • I can’t feel my hands and feet intermittently due to peripheral neuropathy.
  • Steroid shots.
  • My rheumatologist wants me to seek treatment for my hands [who has time for that?]
  • I’m still getting headaches even though I just had my Botox treatment.
  • Fevers.
  • Intermittently needing my cane.

Despite this laundry list of grossness, I need to focus on my goals. My husband and I are buying a house [we move in 3 weeks, I have packed nothing], I graduate in a just over a month, and I am fielding multiple job offers. These are all things I had at one point or another seen as impossible. These are the things I strive for, this is what beating RA looks like. I know I will never be who I was before I was sick, just like I know there is no cure. My definition of beating RA has been altered, I once thought that meant a cure. I now know that beating RA is living your damn life.

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Hand adventures [Part 2]!

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So over the past few months I started dropping things and not being able to feel my hands, additionally I started tripping and falling everywhere I went. All put together we were concerned it pointed to MS [keep in mind this is all a week before our wedding. My neurologist essentially said ‘we will table this until after the wedding it’s not going to be horrible but I’m not doing it now’. Flash forward a month or so, during this time I manage to fall down a full flight of stairs twice. One majorly unfun neurological test later we have found the following, my right hand has carpal tunnel [possibly caused by RA], my left hand is allegedly fine [though it’s beginning to feel like the right] and finally I have peripheral neuropathy in both of my feet. For those of you who haven’t had the fun of a neuropathy test it is conducted by hooking you up to a machine that reads your nerve and muscle responses as they shock you with what I think looks like a miniature taser, they then stick a needle into the muscle in key places and have you flew in order to see how the nerves and muscles are interacting. All in all the test itself is pretty interesting and not too painful.

So what to do about these things that are luckily not MS you may ask? Well, I can wear a wrist brace at night to help with the numbness in my hand and I was told to enroll in a aquafit class so I could strengthen my core as that can help with the lower limb neuropathy. Later this week I’ll be working with my massage therapist to see if there’s anything else we can do to improve feeling in my feet.

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