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Tag Archives: methotrexate

Two doctors walk into a bar…

taxidermy for the ladiesAlrighty! So I went to both my Neurologist and the Rheumatologist yesterday and we learned a couple things. First I saw the neurologist who thinks that the pain issues are related to RA, she wanted to hear what the rheumatologist said. This is the part of the story where I tell you about the longest rheumatologist appointment I have ever had including the one when she diagnosed my RA. We sat there talking about specifically what type of pain it was what I had done for the last 48 hours leading up to it, what was going on in my life, school, work, everything. The best pain descriptor I could come up with was it felt like I was in a hamster ball full of stalactites. She believes that this was a pure Fibromyalgia flare up worse than any I’ve ever had due to the increased stress of failing my first college course, my boyfriend graduating, and the intense cold in the area I live in. She did an incredibly thorough physical and showed that NOT A SINGLE ONE of my joints was swollen granted I had had my Orencia IV two days prior. We did discuss the possibility of me having a minor RA flare as an explanation and she expressed that if we found swollen joints in the near future that she would want to change my IV to Actemra [I feel Orencia is doing a great job though]. The end result of the appointment was no medication change for the time being and both doctors urging my to go to the Mayo clinic’s ‘Pain rehabilitation center’ for the 3 week program. I will be resuming my yoga in an attempt to help with the day to day pain and we will re-assess my medications in 3 months once the cold weather is really gone. On the bright side while I’m not thrilled about not being able to fix this with medication at least I’m not on Methotrexate injections again.

Keep on walking ūüėČ

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So it has come to this…

bioticsThe last month has been a little [lot] rough RA/Fibro wise. I had to be taken to the ER twice in 3 weeks [in 2 states] the combined trips resulting in 2 Benedril, 2 Morphine, 1 Torridol, 1 Ativan, 1 steroid shot, and an allergic reaction. I find this to be an unacceptable way to live my life, being in pain to the point of throwing up is rarely a good sign. Tomorrow I will be meeting with my Rheumatologist and Neurologist to discuss options with them though there aren’t many ways this could go. The most likely option seems to be being put back on Methotrexate, which I cannot express my hatred of enough. It made me so nauseous all the time. I am so very terrified that they will put me back on this drug that I’ve had a tough time sleeping for the last couple nights. More than anything I don’t want my boyfriend to have to worry about me/ see me in bad shape. I am actually kind of hoping this is Fibromyalgia related then we can adjust that medication instead of the MTX. I will update after my appointments tomorrow.

FREEDOM

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RDJ alcohol and narcoticsToday I went to see my rheumatologist. At the beginning of the appointment I was straightforward in telling her about my trip to the Mayo and what they had told me regarding my lack of RA symptoms and the presence of Fibro symptoms. She was very attentive and listened to my whole spiel. I asked if this meant that we questioned my¬†initial¬†diagnosis of RA and she said no, she pulled up a chart on her computer showing my total swollen joint count over time and pointed out how many swollen joints I’d had initially and how they decreased over time as we became more agressive in our treatment. She checked my trigger points and said that they had not been this bad previously and showed me a chart of my previous positive trigger points, neither of us are sure why it is suddenly worse but we agreed that continued use of Lyrica and Tramadol was in my best interest [due to the use of Tramadol I am COMPLETELY off of the Vicodin!]. Then I asked the question I have been dreading and fretting over: “Can I stop my methotrexate?” For those just tuning in Methotrexate [or MTX for short] is a chemotherapy drug that in small doses is used to treat autoimmune diseases such as RA. It is very harsh on your body and I personally have had the¬†unfortunate¬†side effects of mouth ulcers and nausea. In short I would very much like not to be taking MTX injections once a week. So I asked her if I could stop this horrible drug AND SHE SAID YES! I am officially off MTX! This is kind of a big deal. I then asked about my other RA medication Orencia, she said that if my RA is still in¬†remission¬†[which she confirmed is what happened] in 6 months that I can discontinue Orencia! BUT she was very¬†adamant¬†about this disclaimer, once RA is in¬†control¬†getting back to remission after a major flare can be hard to come back from, so from here we proceed with caution. On a positive note I begin¬†tapering¬†off of the NSAID Celebrax tomorrow as they think it may be contributing to my stomach issues.

Additionally I went to the ENT that my mother is very fond of to seek out help for my oral ulcers, he was very helpful and gave me MEGA oral ulcer solution with more drugs in it than I can remember [mostly used on chemotherapy and radiation patients] and some oralgel paste. They are already getting better!

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