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Category Archives: Research

‘Super Better’ and why it matters

happiness dumbledoreLong time no talk fellow spoonies! As some of you may already know this winter has been very hard on me in that I have been flaring up, isolated, stressed, and cold [Oklahoma winter’s don’t mess around]. I’m not as bad as I’ve been before but have been on a steady dose of Tramadol and more Vicodin than I’m happy with. A couple weeks ago I was bad enough that I had to be taken to the ER for a shot of Morphine [which did nothing], Ativan [which did EVERYTHING], and Benadryl in order to get me to where I could at least rest. Luckily for me that was enough to break the pain cycle enough for life to be better for the time being.

Let’s talk about ‘Super Better’. ‘Super Better’ [SB]is a game made by a game developer who was struggling with deep depression brought on by an improperly healed concussion which left her in a lot of pain. She created the game as a way of coping with circumstances she could do little to change. Now while she doesn’t claim it ‘cured’, she does say that it made the mental aspect of it much more bearable [As explained in this TED talk http://www.upworthy.com/the-secret-weapon-a-woman-created-to-save-herself-from-the-brink-of-suicide-2?g=2&c=upw1]. I am just now starting to play SB on my phone and will update as things get better/or don’t [for $4.99 I think it’s worth a shot]. In her TED talk the creator of SB Jane McGonigal claims to even be able to slightly extend your life by creating more positive emotions in your day to day life by completing the ‘power-ups’ in SB such as ‘chug a glass of water’ or ‘got a block? walk around it?’, little ‘power ups’ like this add to your overall wellbeing. You also ‘battle’ bad guys like ‘liquid calories’ and ‘the self-critic’. I’m still working on how exactly this program works but it seems pretty cool so far.

https://www.superbetter.com/

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Mayo Clinic part 1

Mr. RodgersAs some of ya’ll may know I’ve been looking into going to the Mayo clinic is Rochester, MN for a while. A lot of my symptoms don’t line up with the sole diagnosis of rheumatoid arthritis and I need answers so I can start getting better. After jumping through a few hoops and dealing with all sorts of shenanigans  I finally got things sorted. So I am happy to announce that 3 WEEKS FROM TODAY I will be at the Mayo! For anyone who hasn’t been sick for a long period of time it may seem odd that I want nothing more than to go to a hospital for a week but the Mayo is a symbol of hope to a lot of us who are running on empty.

So far I’ve concluded that Kayak.com is wonderful in the planning of trips and that Delta airline may actually be the devil. The appear helpful, but they’re sneaky… and horrible.

Random Mayo Facts

scary LOTR moments

I was derping around the internet doing some research on the Mayo clinic and found some interesting facts.

It’s common knowledge that RA comes with all sorts of fun little add ons. However one of the largest complications of RA besides joint damage is heart failure. “Rheumatoid arthritis patients also have a 50 percent higher risk of heart attack and twice the danger of heart failure, Mayo researchers say.” In an effort to reduce this risk I have been attempting to do some cardio oriented exercises in addition to taking COQ10 supplements on a regular basis.

Regarding the prognosis of RA as a whole in how it affects ones life Mayo research states, “1 of every 5 rheumatoid arthritis patients is unable to work two years after diagnosis, and within five years, that rises to one-third. Life expectancy drops by up to five years.”

http://www.mayoclinic.org/news2012-rst/6957.html

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