Foundation or RPF. Now the RPF was formed in 2011 shortly after I myself was diagnosed. I haven’t had the funding until recently [or the motivation] to officially join until today. Rheumatoid Arthritis is sadly a very misunderstood disease, I myself had no knowledge on it whatsoever when I was first diagnosed. Almost everything I know about RA I learned from the Mayo Clinic website, medical journals I dissected, and fellow RA bloggers. I have been faced with many frustrating encounters with people who were not willfully cruel but simply not educated in what RA really was. So few people not affected by RA understand that RA is more than arthritis; it’s waking up in the morning with pain and stiffness consuming you, it’s constantly being concerned about the degenerating not only of your joints but also your heart and lungs, it’s constant fevers and brain fog, it’s fearing what you’re life would be without health insurance, it’s being afraid of winter [and other triggers]. RA changes how you see yourself and the world around you, many things become risk calculations, you alter your life and alter what others expect from you.
The thing I most love about the RPF is that while it is a young foundation it perpetuates the sharing of information and promotes support within the autoimmunity community. Many individuals who have not been personally affected by RA underestimate the impact it has on someone’s life [especially in it’s more severe forms] and the RPF aims to remedy this. I’ll get off my soap box now.
For more information on the Rheumatoid Patient Foundation or to join go to: