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Chronically Awesome

space tiger is best tiger

Hey folks! Alright so I’m a little over a month into school and I haven’t crashed and burned yet. Last week was a rough once as I missed a majority of my Math class however managed a high B on the exam. I need to improve my overall attendance again however regardless of this past week my attendance is still at an all time high. I’m very excited to be heading back up to Rochester, MN to go to my PRC aftercare at the Mayo Clinic. I’m hoping they will be able to help me get back on track with my PT or at least remind me of what I need to be doing to help myself. I’ve been slacking in that department as my energy level is depleted. However in spite of this my involvement in the Deaf community, my sorority, and my friends is at an all time high, however both my roommate and the boyfriend have expressed alarm at me beginning to overload myself as we all know I am extremely prone to do. What has helped my the most this year so far has been the amazing support system I have, I honestly do not know how I would do any of this without them. Knowing someone has your back and is encouraging you goes farther than anyone realizes, especially to those with chronic illness.

Additionally I have made the decision to discontinue my botox shot protocol temporarily, possibly permanently. It is just one more thing to deal with that has helped minimally and is honestly more trouble than it’s worth at this point. At this point in time is just is not hitting the “worth-it” line, Imitrex is a joke to my body and messes me up so I’ll revisit the issue with my neurologist as a means of handling acute situations.

My boyfriend has been fantastically helpful as of late with helping me get more active, there was a kayaking adventure yesterday with only one casualty [rest in peace boyfriend’s fitbit, the fishes have you now]. Prior to PRC I would’ve told him that it was not something I could do but by limiting our time on the lake and positive self talk I was able to allow myself to be excited for a physical activity. Hopefully more adventures to follow, I am considering getting a bike [which is kind of a big deal guys], I haven’t ridden one since before I got sick [one of the weird limitations I’d put on myself]


One response »

  1. You inspire me with all your activities! I was recently diagnosed with AS and I long to be at least semi-active again!


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