RSS Feed

FREEDOM

Posted on

RDJ alcohol and narcoticsToday I went to see my rheumatologist. At the beginning of the appointment I was straightforward in telling her about my trip to the Mayo and what they had told me regarding my lack of RA symptoms and the presence of Fibro symptoms. She was very attentive and listened to my whole spiel. I asked if this meant that we questioned my initial diagnosis of RA and she said no, she pulled up a chart on her computer showing my total swollen joint count over time and pointed out how many swollen joints I’d had initially and how they decreased over time as we became more agressive in our treatment. She checked my trigger points and said that they had not been this bad previously and showed me a chart of my previous positive trigger points, neither of us are sure why it is suddenly worse but we agreed that continued use of Lyrica and Tramadol was in my best interest [due to the use of Tramadol I am COMPLETELY off of the Vicodin!]. Then I asked the question I have been dreading and fretting over: “Can I stop my methotrexate?” For those just tuning in Methotrexate [or MTX for short] is a chemotherapy drug that in small doses is used to treat autoimmune diseases such as RA. It is very harsh on your body and I personally have had the unfortunate side effects of mouth ulcers and nausea. In short I would very much like not to be taking MTX injections once a week. So I asked her if I could stop this horrible drug AND SHE SAID YES! I am officially off MTX! This is kind of a big deal. I then asked about my other RA medication Orencia, she said that if my RA is still in remission [which she confirmed is what happened] in 6 months that I can discontinue Orencia! BUT she was very adamant about this disclaimer, once RA is in control getting back to remission after a major flare can be hard to come back from, so from here we proceed with caution. On a positive note I begin tapering off of the NSAID Celebrax tomorrow as they think it may be contributing to my stomach issues.

Additionally I went to the ENT that my mother is very fond of to seek out help for my oral ulcers, he was very helpful and gave me MEGA oral ulcer solution with more drugs in it than I can remember [mostly used on chemotherapy and radiation patients] and some oralgel paste. They are already getting better!

Advertisements

One response »

  1. Jo Schneider

    Maddie, this is a lot of good news. It does sound as though you were satisfied with your rheumatologist; that she really listened to you and considered very carefully your med issues. And worked with you on a plan youfeel is a good one. And it sounds as though you are going to stay with her for now. Right? Thank goodness, too, that you’re already getting relief for your mouth ulcers! Great! Love you Mimi

    ________________________________

    Reply

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

Young Yet Infertile

Surviving an unexpected pregnancy & single motherhood after IVF, miscarriage, heartbreak & divorce

PITMINI

I'M NOT LUCKY BUT BLESSED

Rheumi Warrior

The pain you feel today, is the strength you have tomorrow!

Carla's Corner

Day by day with RA ...

Teachers In UAE

Have you ever taught or are thinking about teaching in Abu Dhabi in the United Arab Emirates

WalkingThroughPain

Join me as I live my life with Rheumatoid Arthritis, Lupus, and Fibromyalgia

Lachlan + Cathy

Welcome to the House of Payne

Queer Guess Code

Unraveling Sex and Gender in Pop Culture

Does Your Journey Seem Long?

Living in the Colors...

Thought Catalog

Thought Catalog is a digital youth culture magazine dedicated to your stories and ideas.

%d bloggers like this: