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You said how many shots?!

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Inevitable betrayal fireflyI have been being treated for ‘occipital neuralgia’ by a very talented pain and back doctor, what we have been doing up until yesterday was injecting small amounts of lidocaine into my head and neck to relieve the muscle tension leading to pain and migraines. The down side of this treatment [besides the GIANT needle they use] is that I need new injections once a month. As I live 5 hours away from my doctor this has been very inconvenient. She had mentioned another option where they would inject small amounts of Botox mixed with saline into my head and neck instead as this prevented muscle spasms for 3 months. After going through hell with the insurance [I was the first patient she’s done this on in the practice she’s in], I finally, FINALLY got to get them. I showed up nice and early yesterday with my best friend for support, the doctor came in and told me she would start the injections in my forehead and work her way back. I had not anticipated that many shots and had foolishly assumed it would only be 4-6 injections like it was with the lidocaine. She then slowly injected me with the botox, the fluid itself didn’t hurt but the needle going into the muscle [they go deep] makes a terrible crunching noise and hurts. 23 shots later I was done. My friend decided to take me on a trip to the aquarium as a reward for not crying once [yes I’m slowly turning into a small child]. As of today the injection sites are a little tender but overall okay. My doctor told me that the botox wouldn’t take full effect for 2 weeks, I will update as to if they help.


I am back in Dallas and am in the process of attempting to find a new rheumatologist, the thing is I leave Texas in 2 weeks for school and usually any doctor who has openings that soon isn’t worth seeing. I see my original rheumatologist tomorrow and am  anxious to see how she reacts to my new diagnosis. I hope she accepts in and agrees to treat me as currently my neurologist [who made it very clear that she is not a fibro specialist] is doing the best she can and has been writing me Lyrica and Tramadol. I’m overall better but there a certain points that are so bad that I feel the need to try and dig them out with a vegetable peeler [you’ll understand that someday when you have deep, shooting pain].


P.S. I have realized that in an ideal world I would live in a quiet room with minimal [soft] light that was roughly 64 degrees.


One response »

  1. Jo Schneider

    Ye Gods, Maddie! “How many shots?!” is right!! My admiration for you keeps climbing (How high can it go??), especially because you keep finding out more — and more — and more. And doing. I realize that you undoubtedly sometimes want to say “No More!” and turn your back on it all. Of course. But wow! You sure do dig out information important to you. And act on it. Let the Botox really help. Please. I’ll bevery interested to hear how your present rheumatologist responds. Keep up the good work, my precious one! Love you lots, Mimi



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